BORDIS was founded by a pair of parents with rare children. Their journey to get diagnosis and manage the conditions was encouragement to Raise a voice for Rare diseases patients and their families in Botswana. BORDIS was established to bring solutions to the many challenges of management of rare diseases in Botswana. A lack of awareness about rare diseases even among health professionals delays diagnosis which can take many years. Lack of the right infrastructure, and in some cases prohibitive costs of diagnosis and treatments are often used to deny Rare diseases patients the necessary healthcare in an equitable manner as any patient. Botswana does not have a national policy or any form of guiding documentation specific to rare disease, this leaves Rare disease patients Orphaned due to lack of Government commitment to diagnose, treat, or manage their conditions according to their needs.
Botswana has a small population and due to this there are no rare disease specific organisations. BORDIS therefore servesa collective voice of rare disease patients and as an umbrella organization for rare disease patients and other stakeholders throughout the country. The membership of BORDIS is made of patients and their families, health professionals and different individuals and organisations with an interest in supporting the BORDIS vision.